AJ Taylor's Journey

30August2004

Today we went to the Pulmonologist to talk about the sleep study...and guess what, he feels that AJ needs one. Go figure. That was all that appt. was for. They are supose to call me within a week to schedule the test and then it could be anywhere from 1-3 more weeks to actually have the test, then 2-3 weeks for the result. That is crazy. The Dr did say that he was going to have electrodes on his head to see if he was having any seizures in his sleep, a pulseOX on his fingure to measure oxygen, heart moniter, breath waves moniter and something in his nose...have no idea how you are supose to sleep with all that, but they told me that he is supose to have no nap, wake up early the morning before and I am supose to give him his clonidine so the falling asleep should be easy, the staying asleep will be the problem. I stopped by Opthalmology today to find out what the problem was with scheduling AJ's appt to see the pressures in his eyes. They said that Dr. Dias' office had to call in person to schedule the appt. We called over to them, it was a big hastle, but things finally got worked out and Opthamology finally got what they needed. Turns out that Dr Dias ordered it as an urgent appt so he was supose to have been seen already but the Dr he is to see won;t be in till the afternoon so the nurse is going to call today or tomarrow with when the Dr is able to fit AJ in to test his pressures.

posted by Carey Taylor @ 3:20 PM